Here are some helpful resources that we collected from our experiences that we wanted to share with you all. These are some helpful links to companies and businesses, therapy facilities, and use products that have been super helpful to making our childrens’ lives more comfortable. If you have any resources you’d like to share, please contact us so we can add it to our growing list! We are stronger together as a community!
Links:
- Regional Center of Orange County
- Chromosome 18 Research and Society
- KIF1A Associated Neurological Disease
Facilities:
 | Regional Center of Orange County | 1525 North Tustin Avenue, Santa Ana, CA 92705, (714) 796-5100 |
 | Leaps and Bounds Pediatric Therapy | 4211 Valley View Avenue, Norco, CA 92860, (951) 340-0431 |
Books:
 | The Conscious Parent: Transforming Ourselves, Empowering Our Children by Dr. Shefali Tsabary and Namaste Publishing Inc. |
 | The Awakened Family: A Revolution in Parenting by Shefali Tsabary Ph.D. and Penguin Audio |
 | Steps to Independence: Teaching Everyday Skills to Children with Special Needs, Fourth Edition 4th Edition by Bruce L. Baker |
 | Preemie Care: A Guide to Navigating the First Year with Your Premature Baby Paperback – Illustrated, March 12 2019 by Karen Lasby RN MN |
Gadgets & Tools:
 | ARK’s Hard Mouse Tip for The Z-Vibe® |
 | ARK’s Oral Motor Starter Kit with Z-Vibe and Chewies (Light Blue, with Case) |
 | Special Supplies Juice Bear Bottle Drinking Cup Squeezable Therapy and Special Needs Assistive Drink Container |
 | CYBEX Libelle Stroller, Ultra-Lightweight Stroller Small Fold Stroller, Hand Luggage Compliant, Compact Stroller |
 | AAC Speech Tablet including 8.7″ Samsung (Android) Tablet, TalkTablet PRO AAC/Speech app |
